This past weekend I attended the Children's Tumor Foundation - Utah Chapter NF Symposium at Shriner's Hospital.
The first presentation was Genetics 101 given by Elena Moyle, a genetic counseling student. Much of the basic info I remember from high school/college biology, but there were some specifics to the genetics of NF1 that was new information.
The next presentation was given by Juliann Allred, a neurologist - she talked about nerve compression and how to keep the nerves healthy.
My good friend Kelly Carpenter did a couple presentations about the Children's Tumor Foundation's NF Registry and upcoming Utah fundraising events.
There was a fabulous presentation about learning issues and educational needs of kids with NF1 given by psychologist Nancy Cantor - which I found informative for Olivia AND Nyah.
Dr. Viskochil's presentation was about past/current clinical trials and what is going on with them, and then a discussion about social skill immaturity in kids with NF.
There was so much wonderful, pertinent information, but I still feel like I'm operating on information overload.
If you are interested in donating to the Children's Tumor Foundation, Kurt's sister, Elaine, is currently collecting donations for the Las Vegas NF Walk. We wish we could be there for the walk, but we will be on vacation.
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